Saturday, 17 June 2017

The ME / CFS Story - Havering was chosen for National ME Centre.

Prof. Leslie Findley, ME pioneer
The Daily Telegraph has chosen to draw attention to work done by scientists at the University of California on the "new" disease ME / CFS linking it to hibernation (!).  Followers of the ME / CFS story won't be surprised at yet another redefinition to the ME / CFS model. The "new" disease has had various names throughout its early development as it progessed into a mature medical movement:
  • Royal Free Disease - according to Black Medical Dictionary 38th Edition
  • Yuppie Flu - the 1980s gave the "new" disease impetus in seeking recognition
  • Social Change Flu - coined due to the psychological effects of huge economic and governmental change since the 1980s, moving away from the "yuppie" emphasis.
  • ME, the institutional formalisation of the "new" disease - an effort was made to increase the "importance" of the disease with the medical term Myalgic Encephalomyelitis (ME)
  •  "Relaunch" of ME as Chronic Fatigue Syndrome (CFS) 
Dr Charles Shepherd, medical adviser to the National ME centre said in 2010 "..a key point [is], that we have renamed and redefined this illness from ME into what’s now called “Chronic Fatigue Syndrome”, the term that the medical profession tends to use." 

 The Telegraph finds space for the ME / CFS "specialism"

ME / CFS carefully supported rather than scrutinised by the BBC

Anne Diamond on BBC Radio Berkshire Interviews ME / CFS Big Names

Havering gets National ME Centre - Why us ?

Is expenditure on ME / CFS justified in a NHS crisis ?

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